LAM愛天地

June 1st is Worldwide LAM Awareness Day

6月1日確定為世界LAM（淋巴管肌瘤病）日

淋巴管平滑肌瘤病（LAM），發生於育齡期女性，是一種罕見的，漸進性的，常常是致命的肺部疾病。

症狀包括呼吸困難，咳嗽，肺塌陷，胸痛和疲勞。







Leaders from The LAM Foundation in the United States and the leader of LAM organizations in 17 other countries came together last month to declare June 1st as an annual international day of awareness. Because LAM is such a rare disease, it does not usually get the media attention that other, more commonly diagnosed diseases often get. 

上個月，美國LAM基金會負責人和17個其他國家的LAM機構負責人共同宣佈：每年6月1日定為國際LAM日。

由於LAM是一種罕見疾病，它相對於其他容易被確診的常見病來說通常不易引起媒體關注。

The LAM Foundation has knowledge of approximately 1600 cases of LAM worldwide, but it is estimated that there may be as many 250,000 – 300,000 women with LAM who are currently undiagnosed or misdiagnosed.

LAM基金會統計到的全世界範圍內的病例數約1600例。但據估計，可能有多達25萬-30萬LAM患者沒有被確診或是被誤診。